Am thoughts
Here I sit 4:30 am awakened to thoughts about my MS, my life, Anne, family and my future. It's been 2 years and 8 months since my CCSVI surgery. This period may be the best in my entire life. Free of symptoms and back into the world.
About two weeks ago I appear to have started to have some "issues" creep back into my life with MS. Why, the cause, another surgery, not again, is it all coming back, all thoughts racing around in my mind as I drink my coffee.
Yesterday Anne and I decided it was best to head back into doctor land and see what they have to say. First up, a follow up with an interventional radiologist. In order to do that I have to see a neuro first. To do that we need a referral etc. etc. So a new chapter begins. Where it all goes we will soon see. I will keep you updated as we go.
My am rant.
I have to say that I have completely lost my patience with people who are sick with something serious and choose to live in it. They drink, they smoke, they complain, they swim in it affecting everyone in their lives. Do they realize that? You know the people that could change something, do something and be better. The ones that seem to let pride, a closed mind and general stupidity stand in their way.
Hell, I use to be that guy. Guess what with the help of my awesome wife Anne I learned something. You know what I learned? Get off your ass. Learn, educate yourself on all options (outside your bubble) whatever they are. Grow, have an open mind, change the person you are. Don't live in it, don't be prideful, don't complain about it and don't support it. DO SOMETHING ABOUT IT!
Good advice for anyone facing a chronic disease. Concentrating on what we can do (versus what we can't) is the best way to move forward. It's cut my pity parties short several times. Life is too short to wallow for long in self-pity. Thanks for the reminder.
ReplyDeleteI completely agree I tell myself everyday I'm not dealing with ms at 24 and that I wouldn't be going through it if I wasn't strong enough to deal with it, its been 4 years since diagnosis and I'm better than before thanks to the man above no copaxone or betaseron needed
ReplyDeleteHi...Dave
ReplyDeleteMy name is Rachmat Tubagus. i'm physician from Indonesia. i'm really proud to you. Your fight againts Multiple Sclerosis in your life. i support you. lets we more care and give support to all patients with multiple sclerosis
Dave just removes postings which point out that he never really got anything positive from CSVI. It doesn't work but he's not man enough to admit that it didn't work for him.
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Irrespective of receiving daily oral or future injectable depot therapies, these require health care visits for medication and monitoring of safety and response. If patients are treated early enough, before a lot of immune system damage has occurred, life expectancy is close to normal, as long as they remain on successful treatment. However, when patients stop therapy, virus rebounds to high levels in most patients, sometimes associated with severe illness because i have gone through this and even an increased risk of death. The aim of “cure”is ongoing but i still do believe my government made millions of ARV drugs instead of finding a cure. for ongoing therapy and monitoring. ARV alone cannot cure HIV as among the cells that are infected are very long-living CD4 memory cells and possibly other cells that act as long-term reservoirs. HIV can hide in these cells without being detected by the body’s immune system. Therefore even when ART completely blocks subsequent rounds of infection of cells, reservoirs that have been infected before therapy initiation persist and from these reservoirs HIV rebounds if therapy is stopped. “Cure” could either mean an eradication cure, which means to completely rid the body of reservoir virus or a functional HIV cure, where HIV may remain in reservoir cells but rebound to high levels is prevented after therapy interruption.Dr Itua Herbal Medicine makes me believes there is a hope for people suffering from,Parkinson's disease,Schizophrenia,Lung Cancer,Breast Cancer,psoriasis,Colo-Rectal Cancer,Blood Cancer,Prostate Cancer,siva.Fatal Familial Insomnia Factor V Leiden Mutation ,Epilepsy Dupuytren's disease,Desmoplastic small-round-cell tumor Diabetes ,Coeliac disease,Creutzfeldt–Jakob disease,Cerebral Amyloid Angiopathy, Ataxia,Arthritis,Amyotrophic Lateral Scoliosis,Brain Tumor,Fibromyalgia,Fluoroquinolone Toxicity
ReplyDeleteSyndrome Fibrodysplasia Ossificans ProgresSclerosis,Alzheimer's disease,Adrenocortical carcinoma Infectious mononucleosis. .Asthma,Allergic diseases.Hiv_ Aids,Herpe ,Copd,Glaucoma., Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis.Alzheimer's disease,
Dementia.(measles, tetanus, whooping cough, tuberculosis, polio and diphtheria),Chronic Diarrhea,
Hpv,All Cancer Types,Diabetes,Hepatitis,I read about him online how he cure Tasha and Tara so i contacted him on drituaherbalcenter@gmail.com / . even talked on whatsapps +2348149277967 believe me it was easy i drank his herbal medicine for two weeks and i was cured just like that isn't Dr Itua a wonder man? Yes he is! I thank him so much so i will advise if you are suffering from one of those diseases Pls do contact him he's a nice man.