April already…seems like yesterday I went up to N.Y. to be treated. Guess that makes it 54 days since my surgery. As you can probably tell by the fact I haven't posted I have been keeping busy.
Life is outside now as much as I(we) can get. Walking, hiking, horses, yard work and even cutting down, splitting and stacking of some trees. I have also spent some time at the barn doing repairs. All-in-all doing everything I haven't been doing for the last few years. Time to catch up on my life.
It's funny as I go along with my journey I don't realize all the changes that have happened me. Everyday is, well as I see it and how I think on that day. in the beginning after my surgery I was still in the mind set, be careful don't do to much, are you sure you can do this, whats going to happen to me and how many days will it take me to recover. I no longer get stuck with any of that. My limits are physical now. I just do things and move to the next. The only time things hit me is when I hear my wife talking to a friend about what I am doing or telling me "hey do you realize what you are saying and doing?". It really is incredible, to say things for my wife and I have changed is an understatement.
I recently got all the paperwork from my surgery. All the specifics and statistics. I will being doing a post on that soon so I will keep this one short.
Bottom-line I am doing GREAT. I continue to be where I was no changes, no reverting, just the same and just the same is awesome.
Please any of you who haven't been tested for CCSVI please do so. Get treated.
More soon.
Best to everyone.
I wanted to take a minute or two to tell you that somehow, I stumbled upon your blog, learned about CCSVI and the "Liberation Treatment" right around the time of your 2 week post op posting. Since then my mind has been reeling, I have been making phone calls and pinching pennies trying to figure out how to pay for my own treatment. Rewind a bit, I haven't been tested yet, just had an appointment with my neurologist, Thursday 4/21/11 and to my excitement, found out that he will support me 100% in any way he can but the "leg work" is all up to me, he doesn't have the time or staff to do it for me, which is fine with me! But I am at this moment overwhelmed with emotion, information and confusion with regard to where to begin! I am so inspired by your story and the other stories I have since found.........I know, maybe this doesn't even make sense but I have a feeling you can relate, my biggest question is this, do you have any suggestion as to how to go about being tested, I guess via MRV? Did you get tested in NC or Albany? I am in Chesapeake, VA and cannot, thus far get a vascular surgeon's office to even call me back after I explain what I need to be tested for. My neuro did give me two names of docs to try and even told me if I find out what diagnosis code my insurance will cover the MRV with he will order it. I know I am rambling but would you be willing to answer tha one question? How did you find out that you qualified for the treatment? I was diagnosed with RRMS on 3/06/97, I am married and have 2 boys, 10 and 3 1/2, I have such a strong "gut" feeling that this is what I've been looking for since 1997 that I just can't shake it and if I could actually run for just one day with my boys it would be worth every single moment it's taking to do this! I am on "SSD" but don't use any devices to walk or anything, I just can't run, and walk like I'm drunk, lol! My primary disability is cognitive, I was an office manager for a Neurology practice and following the birth of my oldest son had a relapse that took away my multi tasking and quick mental processing abilities that I so needed to do my job. Anyway, enough of my story, can you recommend where I should begin??!! THANK
ReplyDeleteYOU!!
Send me an email and I will forward you all the information I have. :D BEST of luck moving forward.
ReplyDelete