Well its August 17th, two months since my initial phone call to the "clinic". I still haven't heard anything from them. I have been keeping up on others making first contact, getting scheduled and having the treatment. It appears the line has gotten very LONG. On a bothersome note it also appears I may be waiting longer than I anticipated but no one really knows (UGHHHH). Waiting and not knowing is a real killer.
As far as my MS goes the summer has taken its toll on me. My heat and fatigue issues are what I will rate a 8 out of 10. Definitely the worst they have ever been. I have very limited energy these days and NO heat tolerance at all. 15-20 minutes in the heat and I am done. Everyday seems like a test these days.......can be a bit frustrating.
On the medical side of my life I am off to see my Atlas Orthogonist tomorrow (awesome) and I am going for my 6 month to my neuro next week. In addition blood will be taken this week so they can test all my levels.
The fund raising is moving ahead and I can't thank everyone enough that has gotten involved. Keep an eye out for information on the Sedona, AZ hotel auction. It will be going up very soon! It will be very similar to the NYC one but 4 days!
More soon keep the emails coming everyone its great to hear from everyone.