Wednesday, July 21, 2010

Thoughts CCSVI, Fund Raising and Friends

Quick update on things.

The fund raising is going well. I am very humbled by the people that surround me in my life. I can't find the words to express my gratitude or thank everyone enough. Thank you all for getting involved, fund raising and donating to help me get my treatment. With your continued help I am going to get the money needed to pay for this treatment!

I would also like to thank everyone that is helping me spread the word on CCSVI and MS. CCSVI is such a huge help for those with MS. The "people" spreading the word seems to be the only way to get the word out these days in the US. It's very unfortunate. I still hear of, or talk to people that have never heard of CCSVI and thats a sad sad situation. Please check out the new 3 days post CCSVI video I added to the left. Keep spreading the word!

One of my FB friends has the procedure last night and is doing well. She was very tired last night so her report was understandably short after the procedure. A quote from her initial report "can tell you that my right leg feels the same as my left leg for the first time in years!". I can't wait to hear how she is today and how things progress the next few days and weeks. Very Exciting.

As far as I go.....still awaiting my phone call from the doctor... Waiting is really hard. No definitive treatment date, no date for the phone call to come...its a killer. I will let everyone know what's going on as soon as I know.

Thanks  again for all the support and continued help. There is no way I could get through this without my wife, family and all of you.


1 comment:

  1. Strategic Importance of Jugular Vein Dilatation Otherwise Known as ‘Liberation Therapy’
    The Combination Therapy includes neck vein dilatation based on the findings of Zamboni, et al. The vein dilatation or venoplasty therapy provides the appropriate drainage of the CNS that prevents a retrograde pressure exertion on the myelin sheath covering the CNS. Whatever triggers the autoimmune system to turn on in people predisposed to MS, this back-pressure needs to be resolved. In case after case, the typical symptoms of MS retreat in individuals where the veins are expanded and the flow pressures are equalized. Since keeping the jugular and azygous veins fully open is the key to reducing MS symptoms, it is of paramount importance to know what other post-procedure factors create enduring effect in the venous flow. For example, there is now good clinical and observational evidence to support the fact that stem cells (transplanted intravenously at the time of the venoplasty) reduce swelling, thrombin buildup, clotting and subsequent permanent intraluminal damage leading to scar tissue. As to what has already been established through clinical trials and subsequent therapeutic practice, it has been found that even in patients with severely malformed or abnormal jugular vein structure, the intravenous introduction of autologous stromal cells (MSCs) post-operatively has served to repair injury attributable to venoplastic damage and desquamation of the endothelial and subendothelial cells of the interior venous lumen (tunica intima). Peak velocity, time average velocity vein area, and flow quantification have been assessed by means of echo color Doppler at periodic intervals post-venoplasty. Significant hemodynamic improvement has been recorded at the level of the veins in the neck post-venoplasty. Moreover, this additional stem cell transplantation therapy has led to increased luminal diameter and improved patency rates demonstrating that the introduction of stem cells post-operatively significantly modifies the hemodynamics of the jugular veins more effectively than venoplasty alone.For more information please visit http://www.ccsviclinic.ca/?p=1194 or you may call the toll free number at 888-468-1554 or info@ccsviclinic.com

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